My wife Kam and I have recently launched a new fundraising campaign called “Bike for Kam” http://bikeforkam.com/to raise funds and awareness towards the disease HIBM (Hereditary Inclusion Body Myopathies). HIBM is a rare genetic disorder that causes progressive muscle wasting and weakness. Muscle degeneration usually starts around the age of 20 – 30 and can lead to very severe disability, or even a quadriplegic state within 10 – 20 years.
My wife Kam is afflicted with this terrible disease which is why we both work very hard to fundraise for ARM http://www.hibm.org/arm/ (Advancement of Research Myopathies), the organization which is researching to find a cure of HIBM.
Bike for Kam http://bikeforkam.com/ is about a group of friends coming together to complete a coastal bike tour from San Francisco to Santa Monica (Los Angeles) on April 25 to April 29, 2011. The purpose of their journey is to raise funds and awareness for Kam, and for all those afflicted with HIBM. Through this project we hope to raise awareness of HIBM, so that we may soon find a cure for this rare genetic muscle debilitating, and degenerative condition.
Bike for Kam http://bikeforkam.com/ is a grass roots project which means we are counting on you to donate and pass it around your community. Post it on Facebook and Twitter, and email it to whoever you think would be interested. Please take a little time to check out the site and to view our promotional video. A cure is within reach but we need your help to get there.